Having Minimal Change Disease as an Adult - My Experience So Far (3 Months After Diagnosis)

If you’re coming from my IG there’s a high chance you know this, but about 3 months ago, I got diagnosed with a kidney disease called Minimal Change Disease. 

You can go to this website to read more in English, but I’m here today to tell my own story as an adult with MCD.

What happened to me?

Like I said, my journey started 3 months ago, when I first noticed one ankle swelling like a balloon. I thought nothing of it because apart from the ankle, nothing hurt. I thought I had just stepped wrong/had bad shoes on my walk and that’s it. We went to the summer cabin, all the while the swelling kept getting worse, and when I finally went to see a nurse a week and a half later, I had swelling on my lids, fingers and such.

In hospital gown